Palliative Care Strategy

Awareness and Visibility

Unfortunately patients and families who have received hospice/palliative care services have remarked that they wished they had been referred to such services earlier. Many patients only receive hospice/palliative care in the end-of-life-stage of their disease. Many people are unaware of hospice as a possible option and that palliative care which hospice provide can make a significant positive difference in the quality of life for patients and their families. It is therefore of vital importance to raise awareness and to make palliative care more visible in the Pretoria West area. Various social and welfare organisation are working in the area and come face to face with illness and suffering on a daily basis. Many of the patients are not referred to palliative care service because of the lack of knowledge and understanding of what palliative care is and who can provide it.

Awareness and visibility can be increased in a number of ways. It was suggested that an Awareness/Information/Fundraising event is held at the Quagga Centre, where all members of the Palliative Care Forum can present their organisations and what their contribution to palliative care and the welfare of the Pretoria West community is. This event can also be used to recruit potential volunteers and community caregivers.

Access and Referrals

Access to palliative care services should be advocated by all members of the Forum in the community of Pretoria West area, both to residents and to organisations working in the area. Residents needing palliative care should be able to access a palliative care service through a referral to the relevant organisation by any other organisation working in the area.

Palliative Care services would be provided more efficiently if relevant stakeholders are informed about referral procedures. It would be very beneficial to the community of Pretoria West if all organisations working in area could be each others’ eyes and ears and if cross-referring could take place. Referral procedures should be discussed in detail during forum meetings and means should be investigated to streamline the procedure for the benefit of the patients.

All members of the Forum declare by endorsing this document that they understand and respect that all patient information shared with them with regard to referrals is confidential and that they consent to this confidentiality clause.

Contributions that organisations can make towards palliative care:

Awareness and Visibility
Awareness Talks CANSA / HPCA
Palliative Care Advocacy and Development HPCA
Awareness and Events Quagga Centre
Counselling
Bereavement Counselling Sungardens Hospice
Counselling and Support Groups CANSA / Ondersteuningsraad / Sungardens Hospice
Patient Care
Home Based Care Holy Cross Hospice / Sungardens Hospice / SA Red Cross Society / Gereformeerde Kerk – Rietvlei (venue) / Eljada Huis – Daspoort (training / venue)
Hospitalisation Government Hospitals
Terminal Care / In-Patient Unit Care Sungardens Hospice
Placement of Patients
Admission to Tipuana Interim Home CANSA
Facilitate Frail Care Sungardens Hospice
Support with children of patients (foster care) Ondersteuningsraad
Referrals
Early Detection / Education on Prevention CANSA
Home-Based Care and Social Welfare SA Red Cross Society
Palliative / Terminal Care (Home-Based Care and IPU) Sungardens Hospice
Primary Health Care / Early Detection / Treatment City of Tshwane Health Clinics
Social Welfare Ondersteuningsraad
Social Services
Assistance and guidance with applications for grants SASSA
Nutritional Support SA Red Cross Society
OVC Programme Ondersteuningsraad / Sungardens Hospice
Social relief for the vulnerable Salvation Army / SA Red Cross Society / Solidariteit Helpende Hand
Education and Training
Education on Prevention CANSA
Community Caregiver Training Department of Health / Sungardens Hospice
Home-Based Care Training Department of Health / Eljada Huis – Daspoort / Sungardens Hospice
Palliative Care Training Sungardens Hospice
Personal Development Training Sungardens Hospice
Volunteer Training Sungardens Hospice

Home-Based Care

All organisations working in the Pretoria West area appear anecdotally to experience a shortage of home-based care personnel, community caregivers and volunteers. In order to provide quality palliative care for all, the Forum will need to address this problem on a regular basis. The following solutions were suggested at the Forum meeting and will be investigated until a suitable solution is found:

  • Home-based care staff at various members organisation are trained in palliative care by Sungardens Hospice in order to be utilised in the area for palliative care.
  • Community caregivers are recruited from the Pretoria West community, trained in palliative care by Sungardens Hospice and deployed in the area where they live and are needed.
  • Volunteers should ideally reside in the Pretoria West area. A separate “Volunteer Organisation” that manages a “pool of volunteers” accessible by all member organisations would be the ideal. Volunteers may also be made available to all Forum member organizations via the Sungardens Hospice “Personal Development Course”. This course has proved to deliver quality volunteers to Sungardens Hospice in the past. It was also suggested that member organisations’ information be included in the existing course material and that participants are offered a choice of where they would like to volunteer.

Education and Training

All professional nurses, enrolled nurses, home-based care staff, community caregivers and volunteers working with persons in a palliative care programme must be palliative care trained. Sungardens Hospice presents various courses in palliative care, namely:

  • Community Caregiver Training
  • Home-Based Care Training
  • Palliative Care Training
  • Personal Development Training
  • Volunteer Training